• Queen Mary University of London
  • Barts Health NHS

Confidentiality

Will my details be kept confidential?

Yes, absolutely. This is very important to us.

Best ethical and legal practice will be followed to ensure that all information collected about you will be handled in confidence. Your samples will be labelled with a unique sample study number (not your name) before being stored. Information from genetic and other tests and from your health records will be linked to this unique number but each stored in separate places from your personal details (surname, first name, contact details). Only the Chief Investigator of the study would be able to link data together, and then approval from our community and scientific advisory board for each research project would be required.

Please also see FAQs on How will you keep my data secure? , Will you sell or release my personal information? and Will you look in detail through my medical records with my name on?