• Queen Mary University of London
  • Barts Health NHS
  • Bradford NHS
  • Manchester Uni

Data Processing Statement

26 June 2018

We have been requested by the Barts Health NHS Trust and Queen Mary University of London Joint Research Management Office to publish and comply with this statement about data processing under the new General Data Protection Regulation (GDPR) which came into force on 25 May 2018. The statement has been drafted by the national NHS Health Research Authority. Our volunteer information sheets have also been updated.

David van Heel, Chief Investigator, East London Genes & Health


Queen Mary University of London is the sponsor for this study based in the United Kingdom. We will be using information from you and your medical records in order to undertake this study and will act as the data controller for this study. This means that we are responsible for looking after your information and using it properly. Queen Mary University of London will keep identifiable information about you for 20 years after the study has finished.

Your rights to access change or move your information are limited, as we need to manage your information in specific ways in order for the research to be reliable and accurate. If you withdraw from the study, we will keep the information about you that we have already obtained. To safeguard your rights, we will use the minimum personally-identifiable information possible.

You can find out more about how we use your information at http://www.jrmo.org.uk/


Our legal basis for data processing under GDPR is ‘task in the public interest’ and (special category for health data) ‘necessary for scientific research in accordance with safeguards’. Furthermore we have individual written consent from each volunteer, which also provides a basis under English Common Law.